I think the biggest challenge of them all is explaining to children what is going on with Austin. Some people, adults are not as understanding and will stare and I love it when kids ask questions about Austin. Austin is such an amazing little boy that people just need to get to know. We got our prescription to go to get him a new bath seat which might be a bit big for him. They said he's in a weird age when some things will be to small and some to big.
He is currently on tons of medicine:
Topamax 12mL twice a day
Prilosec 5mL once a day
Keppra 3 mL twice a day
Banzel 1mL twice a day
EES .5 three times a day
Valium .4 mL twice a day
Sabril 10mL twice a day
He has his lotion just in case his g tube is looking bad and than also disastat for seizure more than 5 minutes!
Hoping we can come off of some of these since their not working!
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