My husband came up to the hospital and so did my mom. My mom came to take Justin with her so that we could handle what is going on the hospital. Our friends Joe, Amber and Nick came to visit us and watch the baby leave. It was so hard to see Austin leave. I had no access to my little boy. I felt like a piece of me was dying when the people from Children's Hospital showed up. Our friends tried to be there for me. My husband tried to keep a strong face but when you truly don't know what is going on with your child it's a whole different world of unknown.
When he got to Children's they started to run MRI's, CT scans, EEGS and figured out so much. Most of the news I found out on the phone when I went to visit him. Someone told me that he had the severe brain damage than and we didn't know what he would be able to do.
Through it all we started to see Physical Medicine, OT, PT, Neonatal Clinic, ENT, GI and several other people. We went to main campus a lot of other people. We were doing every other week to begin with OT and PT. Neonatal were trying to figure it out and it was at the beginning of 2011 when we got an official diagnosis from Dr. Klumar (we call him our good luck doctor since his name is Karl - Austin is Austin Carl). He diagnosed him with Spastic Quadriplegic Cerebral Palsy. Earlier in the year we started to have more problems with Austin's seizures. Each and every day he'd do this cry and we didn't know what was going on. Found out it was Infantile Spasms. Which meant in his case that his brain was worse off than we thought.
Lots more testing has came about and he has been diagnosed with the following: Pyloric Stenosis - Surgery on November 25, G tube placement - November 25, HIE, Leringo Molasia, Tracia Molasia, Infantile Spasms, Spastic Quadriplegic Cerebral Palsy, Hypertonia, and Complex Epilepsy.
No comments:
Post a Comment